How do I help my wife get better health care response from her Doctors?
For the last year my 39 yr old active wife’s health has declined to; to exhausted to get off the couch. Every test she takes they find some little problem. Ok quick list of issues. Most drastic 6 months ago her weight was 135 (5’6) size 8. As of Jan 1 09 119 size 4 (still loosing too). This is after holiday meals, and well lots of fast food because I don’t cook much. She will bruise all over her legs, and she can feel a popping under her skin where a bruise will show up later. She is exhausted all the time, her eye sight will go fuzzy on her for no reason, migraines, muscle lumps in arms, and legs that are hard to rub out. Swollen glands under her arm pits, sometimes groin area, sometimes swelling will happen right below her neck on her chest. Sometimes it will be 7 or more days before she can have a bowl movement, even with fiber. At those points even her skin hurts. She gets out of breath easy, and tires easy. Sometimes she has tremors in her arms where they shake. She was given b12 shot, tested for thyroid, AC1, and myacemia gravis. The last doctor tried to tell us it is in her head. But I have seen this decline, this is real. She has some good days that she runs herself ragged on because she is afraid of the next day being a bad one. She is not depressed because if she can’t walk she tries to paint or write to keep her mind sharp. She is just doing everything via couch or bed.
Her aunt died this year of ALS that took doctors 10 years to figure out, and now my wife is scared she has it too.. Please help if you can.
My wife thinks Lupus too. But we are stuck within the bounds of our HMO PCM staff and not well off enough to pay out of pocket else where.
oh forgot to mention.. she runs random fevers, and she seized so bad from just a 101 temp I had to call 911..
seeking something deeper that Psy Dr. we have done that.. they care less than regular doctors. They just want her to try psy meds to see if they help. but we risk adding symptoms. lymphnodes under her armpits are as big as walnuts under left side today.. and as far as we can tell so is glad on her chest too.. Lupus fits but so did cronic fatigue..
